This is Demery again.  April passed earlier today and I am sure is resting comfortably with the Angels now.  

 

Cindy had texted me last night that the doctors said that both of Aprils lungs were diseased and she had hours, MAYBE days.  But before I could post that update I received a text from Cindy today saying only that April had passed. 

Hi, this is Demery (aka deejays_doodles).  I just got off the phone with Cindy and she gave me permission to hack into her blog and give an update. (Cindy can correct me on anything if I get it wrong)

 

First, a couple of people weren't sure what Palliative care is so I looked up the definition:
Palliative care (pronounced pal-lee-uh-tiv) is the medical specialty focused on relief of the pain and other symptoms of serious illness. The goal is to prevent and ease suffering and to offer patients and their families the best possible quality of life.  (relief of pain as opposed to trying to cure)

 

Cindy has been at the hospital all day.  April's Dr called Cindy this morning and said she needed to come to the Hospital.  The doctors say that April does not have a lot of time left.  April was doing "ok" for what she is going through but in the last couple days she just took a turn for the worse.

 

Cindy knows everyone is wondering what is going on so she asked me to post a blog for her.  If I hear from her again, I will do another update.   Just please pray not just for April but for husband Ken, and for Cindy & Tessa and all the others in April's life.

A new set of drugs.

A new oxygen machine.

A hallucination.

A fall.

The realisation  despite it all, we are both (April and I ) are a hell off a lot stronger then I thought.

 

April hasn't really slept in a really long time, on Monday we saw a pain and symptoms Doctor and he gave her some new meds and a protocol  for us to follow.....Well the pain meds are just too strong and did some nasty things to her mind....It started with her telling me that she just wanted to go home....Where we are has been home for 15 years....Then she started looking for things walking around when you have what she had in her system.....Not a good idea. Then she told me she wanted to go to the hospital because they wouldn't be mean and make her eat and take pills like Ken and I.

Then she tried to get up again and  fell in between the bed and wall, I got her up and back into bed, her fighting all the way....Called her hubby and he came and calmed her down.

The hubby and I have agreed to cut the new pain med down and see how that goes....Giving someone who has never taken drugs of any kind something that strong isn't a good idea...Don't worry  we talked to the health nurse and she agreed with us.

On Friday I am going in for my eye operation, I am really considering cancelling it....Because  I truly am the only family they have....When the Doc asked them on Monday what family they had to help the both said Cindy's it......I just about fell over.....Gee thanks! No pressure huh?

The new oxygen machine seems to be helping more then the canisters did though, she is sleeping soundly and has been for over an hour...so that's good.

So today  is another like many to come, handing out pills making deals  so she eats....Those can get funny...LOL!

We saw a really nice Doc today, and it looks like he can really help her get her pain under control.

Tessa is trying to take advantage of the fact I'm not home all day I have to have a really good talk with her  about it.... She  has to understand I'm trying my best to be there for her as well but if she tries to pull crap, it just makes everything harder then it needs to be.

I'm at April's now..... She is sleeping, or trying to anyway.

In her kitchen she has a copy of a drawing that was done of us in 1987 by an artist in the park.....MY GOD! We were young and beautiful, that's not vanity.....It's how the artist saw us.

Those 18 and 19  year old girls had NO clue what was coming.....In that picture I see such promise......Some things we achieved....Some we didn't.

Tessa

 

Cleo & Bella

 

Cleo

I'm here looking after a sick kid....And while he zones out in front of the Weather Network, I get to be on the computer.... God I really hope I don't get sick....

 

So here are some updates:

 

April is seeing the specialist today. She gave me SUCH stress yesterday, it was horrible.

I had some errands to run and I was trying to get out the door and she calls me, she is upset and panicky (this is a normal state for her these days. And just wanted to talk so I talked to her for a few minutes and  told her I would call her back from my cell when I got one the bus....So that's what I do, she answers and all she says is " I have to go to the hospital!"  (said in a very urgent voice) and hangs up.....I try and call her cell and she answered it but didn't talk, and shut it off!

So I called her hubby's cell, and asked him "OK what part of the hospital is she in?"

He said, "Oh she's just having x-rays and blood work done..."

I said, "That's not what it sounded like when I talked to her..."

He said "She did it to you too huh? "

I tell you I was ready to jump out of my skin....I walked into my Mother's house (because I was close and wanted a ride home.) and said. "I need a drink or junk food or some really good drugs!"

I know MY stress and worry level is very high, so I can imagine her hubby's

I will be going to the hospital with her tomorrow, so I will get more info then.

 

My Mother is doing  a lot better.

 

I am going to a pre eye op appointment on Friday....Then on the 20th I'm going in for the operation....Like I asked "Momma" the other day over text, Is it sad that I'm look forward to it as a break?

I haven't had any real sleep in......I don't know how long, so going under will give me at least a couple of hours deep sleep.

I may have a new job in a month or so....It's a little up in the air right now....As with very thing in my life right now I'm hoping for the best but preparing for the worst.

I don't like living like this.....I really don't.